My personal journey as an infertility survivor, battling endometriosis, recurrent pregnancy loss and a balanced translocation. Trying to help others on their journey.
Wednesday, August 10, 2011
Monday, August 8, 2011
My Return To The Land Of The Living
So it has been way too long since I have last written. Dealing with my endometriosis (including having surgery) has made these past few months very difficult, and at times excruciating. I have spent most of these recent days just trying to keep on my own two feet, and when I had the energy, take care of my little girl.
Endometriosis is a disease where the tissue that lines a woman’s uterus escapes the uterine cavity and attaches outside the uterus. Every month during menstruation this tissue grows throughout the abdominal cavity, attaching to whatever it encounters along the way. The tissue sheds, just like during the “normal” menstruation of a woman without this condition, except the tissue in the abdominal cavity has nowhere to go causing significant problems. Unfortunately, the tissue that attaches outside the uterus causes scar tissue throughout the abdomen. The tissue can also form adhesions, which sometimes causes a woman’s organs to stick to one another and to the pelvic wall.
Five years ago, after many reproductive diagnostic tests, my reproductive endocrinologist diagnosed me with endometriosis. My doctor had suspected endometriosis because I have always had painful periods, which were getting worse over time and I had terrible stomach issues resembling irritable bowel syndrome, which became worse during menstruation. My doctor found adhesions and scar tissue growing on my lower intestines, on the surface of my uterus and on one of my ovaries. My endometriosis wasn’t severe, but even a mild case can cause pain and infertility. After my first surgery I had some amount of relief from the monthly pain and other symptoms. Unfortunately though, surgery for endometriosis only causes temporary relief, because every month the tissue continues to grow outside the uterus, and there is no cure yet for this disease.
Soon after my first surgery, I got pregnant with my daughter. Since my daughter’s birth three years ago, I have had many more fertility procedures and miscarriages (not to mention surgery to remove my gallbladder). Month after month, especially during my miscarriages, I could feel my endometriosis getting worse. This spring, the pain I was having during ovulation and during my periods was intolerable. My endometriosis started inhibiting my daily life. I would have to schedule social events, and even tasks like food shopping, around my period. My husband would have to stay home from work or go in late when my period came because the pain and bleeding were so intense that I felt like I could pass out.
In May, the pain at ovulation was so bad that I thought I was having an ectopic pregnancy. I rushed to my reproductive endocrinologist’s office quite concerned, and after sonograms and tests, he did a physical exam where he could actually feel adhesions behind my uterus. He gave me some medicine to try to stop my period and give me relief. After getting a horrible period and sensing no relief in sight, I decided to go to one of the few experts in endometriosis, Dr. Tamar Seckin. I had heard his name from reading about the “Top Chef” host Padma Lakshmi’s journey with this disease and how this doctor had helped her. Dr. Seckin was one of the few doctors that has dedicated his whole career to understanding and treating endometriosis.
After my first meeting with Dr. Seckin, I knew he would be the one that could help me. He told me that I would have to have another surgery. After a month of tests that included an MRI, ultrasounds and a colonoscopy, I was ready to have my surgery. I was really anxious. During my first surgery, I had felt like I had nothing to lose. I had been desperate to have a baby, and if this operation would help me, I was all for it. Now, blessed with my three year old daughter and being confronted with my second surgery, I couldn’t help but imagine the worst possibilities. What if something happened to me during surgery? How would I recover with my little one at home? How would my daughter be affected by my not being able to take care of her? My husband reminded me that this surgery was for her too. Having a mommy that is not in pain for half the month would ultimately be good for her.
My doctor wanted to do the surgery during my period in order to be able to see the extent of the endometriosis more clearly. The night before surgery I was in intense pain, not able to rely on my usual three Motrin every three hours. My abdomen was so swollen I actually looked like I was three months pregnant. The morning of the surgery I cheerfully kissed my daughter goodbye, told her I loved her and then ran to the car and cried my eyes out. I was so sad to leave her. I got to the hospital and parted with my husband so that I could change into my hospital gown and go through intake. My husband was all too familiar with this scene. During our nine years of marriage, this would be my fifth operation, which doesn’t even include the three IVFs I have had. Every time he sees me in a hospital gown and puffy hair net, he gives me a reassuring smile and looks at me like I am the most beautiful girl in the world.
I met with the doctors involved in the surgery and they reassured me I would be okay. I remember walking into the operating room, lying on the table, bleeding tremendously from my period and feeling overwhelmed thinking about my daughter, the risks of the surgery and the road to recovery. Tears started rolling down my cheeks. Luckily the anesthesiologist came in and took my mind off these overwhelming thoughts with his friendly small talk, until I was in a peaceful slumber. The next thing I knew, I was being encouraged to start waking up from surgery by a gentle nurse. The road to recovery had officially begun.
When I asked my doctor where in my abdomen the endometriosis was prevalent, he replied, “Everywhere.” Adhesions had grown all over both ovaries such that my ovaries had been stuck to my pelvic wall. The scar tissue was all along my rectal area, behind my uterus, on my bladder, on my ureter, adhering it to my pelvic wall, and in other places as well. Dr. Seckin took 16 biopsies altogether. I was very lucky that none of my reproductive organs or my kidneys had to be removed, which is what happens to many women with endometriosis. I was also grateful to Dr. Seckin for performing such a successful surgery.
It has been almost 6 weeks since my surgery and I am still not feeling 100%. The first two weeks after surgery, I needed help taking care of my daughter. Although I was up and walking around and could do a lot of things for her, I didn’t have the energy or the stamina to be there for her for our usual 14 hour day together. By the third week I had her to myself and did okay. Then my period came, and it was excruciating because the inside of my body was still raw and in the process of healing. That was really hard because just when I thought I was better, I felt worse than ever. But that too passed and my energy is back again. After a few months my body will be healed and I should feel better than I have in years.
I am hoping this surgery will provide me with relief from my monthly pain, for at least a few years. I will most likely have to have this surgery again in the future when the symptoms from the endometriosis become unbearable again. I have always been a very strong-willed, independent person. Not being able to do things for myself or for my daughter, having to rely on others and feeling weak and in pain has been emotionally hard for me to take.
I have woken up these past few days doing my happy dance. I am so incredibly grateful not to be in excruciating pain. I am happy to be writing again and feel empowered to talk about endometriosis in this blog. Endometriosis is a disease that affects millions of women, yet no one talks a lot about it, many doctors don’t even know about it, and there is not a lot being done to find a cure. When I first asked my gynecologist about my painful periods, her response was that it was normal and nothing to worry about. I am here to tell you it is not normal, you are not crazy, and there is help and support out there for you.
Endometriosis is a disease where the tissue that lines a woman’s uterus escapes the uterine cavity and attaches outside the uterus. Every month during menstruation this tissue grows throughout the abdominal cavity, attaching to whatever it encounters along the way. The tissue sheds, just like during the “normal” menstruation of a woman without this condition, except the tissue in the abdominal cavity has nowhere to go causing significant problems. Unfortunately, the tissue that attaches outside the uterus causes scar tissue throughout the abdomen. The tissue can also form adhesions, which sometimes causes a woman’s organs to stick to one another and to the pelvic wall.
Five years ago, after many reproductive diagnostic tests, my reproductive endocrinologist diagnosed me with endometriosis. My doctor had suspected endometriosis because I have always had painful periods, which were getting worse over time and I had terrible stomach issues resembling irritable bowel syndrome, which became worse during menstruation. My doctor found adhesions and scar tissue growing on my lower intestines, on the surface of my uterus and on one of my ovaries. My endometriosis wasn’t severe, but even a mild case can cause pain and infertility. After my first surgery I had some amount of relief from the monthly pain and other symptoms. Unfortunately though, surgery for endometriosis only causes temporary relief, because every month the tissue continues to grow outside the uterus, and there is no cure yet for this disease.
Soon after my first surgery, I got pregnant with my daughter. Since my daughter’s birth three years ago, I have had many more fertility procedures and miscarriages (not to mention surgery to remove my gallbladder). Month after month, especially during my miscarriages, I could feel my endometriosis getting worse. This spring, the pain I was having during ovulation and during my periods was intolerable. My endometriosis started inhibiting my daily life. I would have to schedule social events, and even tasks like food shopping, around my period. My husband would have to stay home from work or go in late when my period came because the pain and bleeding were so intense that I felt like I could pass out.
In May, the pain at ovulation was so bad that I thought I was having an ectopic pregnancy. I rushed to my reproductive endocrinologist’s office quite concerned, and after sonograms and tests, he did a physical exam where he could actually feel adhesions behind my uterus. He gave me some medicine to try to stop my period and give me relief. After getting a horrible period and sensing no relief in sight, I decided to go to one of the few experts in endometriosis, Dr. Tamar Seckin. I had heard his name from reading about the “Top Chef” host Padma Lakshmi’s journey with this disease and how this doctor had helped her. Dr. Seckin was one of the few doctors that has dedicated his whole career to understanding and treating endometriosis.
After my first meeting with Dr. Seckin, I knew he would be the one that could help me. He told me that I would have to have another surgery. After a month of tests that included an MRI, ultrasounds and a colonoscopy, I was ready to have my surgery. I was really anxious. During my first surgery, I had felt like I had nothing to lose. I had been desperate to have a baby, and if this operation would help me, I was all for it. Now, blessed with my three year old daughter and being confronted with my second surgery, I couldn’t help but imagine the worst possibilities. What if something happened to me during surgery? How would I recover with my little one at home? How would my daughter be affected by my not being able to take care of her? My husband reminded me that this surgery was for her too. Having a mommy that is not in pain for half the month would ultimately be good for her.
My doctor wanted to do the surgery during my period in order to be able to see the extent of the endometriosis more clearly. The night before surgery I was in intense pain, not able to rely on my usual three Motrin every three hours. My abdomen was so swollen I actually looked like I was three months pregnant. The morning of the surgery I cheerfully kissed my daughter goodbye, told her I loved her and then ran to the car and cried my eyes out. I was so sad to leave her. I got to the hospital and parted with my husband so that I could change into my hospital gown and go through intake. My husband was all too familiar with this scene. During our nine years of marriage, this would be my fifth operation, which doesn’t even include the three IVFs I have had. Every time he sees me in a hospital gown and puffy hair net, he gives me a reassuring smile and looks at me like I am the most beautiful girl in the world.
I met with the doctors involved in the surgery and they reassured me I would be okay. I remember walking into the operating room, lying on the table, bleeding tremendously from my period and feeling overwhelmed thinking about my daughter, the risks of the surgery and the road to recovery. Tears started rolling down my cheeks. Luckily the anesthesiologist came in and took my mind off these overwhelming thoughts with his friendly small talk, until I was in a peaceful slumber. The next thing I knew, I was being encouraged to start waking up from surgery by a gentle nurse. The road to recovery had officially begun.
When I asked my doctor where in my abdomen the endometriosis was prevalent, he replied, “Everywhere.” Adhesions had grown all over both ovaries such that my ovaries had been stuck to my pelvic wall. The scar tissue was all along my rectal area, behind my uterus, on my bladder, on my ureter, adhering it to my pelvic wall, and in other places as well. Dr. Seckin took 16 biopsies altogether. I was very lucky that none of my reproductive organs or my kidneys had to be removed, which is what happens to many women with endometriosis. I was also grateful to Dr. Seckin for performing such a successful surgery.
It has been almost 6 weeks since my surgery and I am still not feeling 100%. The first two weeks after surgery, I needed help taking care of my daughter. Although I was up and walking around and could do a lot of things for her, I didn’t have the energy or the stamina to be there for her for our usual 14 hour day together. By the third week I had her to myself and did okay. Then my period came, and it was excruciating because the inside of my body was still raw and in the process of healing. That was really hard because just when I thought I was better, I felt worse than ever. But that too passed and my energy is back again. After a few months my body will be healed and I should feel better than I have in years.
I am hoping this surgery will provide me with relief from my monthly pain, for at least a few years. I will most likely have to have this surgery again in the future when the symptoms from the endometriosis become unbearable again. I have always been a very strong-willed, independent person. Not being able to do things for myself or for my daughter, having to rely on others and feeling weak and in pain has been emotionally hard for me to take.
I have woken up these past few days doing my happy dance. I am so incredibly grateful not to be in excruciating pain. I am happy to be writing again and feel empowered to talk about endometriosis in this blog. Endometriosis is a disease that affects millions of women, yet no one talks a lot about it, many doctors don’t even know about it, and there is not a lot being done to find a cure. When I first asked my gynecologist about my painful periods, her response was that it was normal and nothing to worry about. I am here to tell you it is not normal, you are not crazy, and there is help and support out there for you.
Saturday, May 7, 2011
Honor Thy Mother and Those Trying To Become Mothers
I’m a grateful Mother, with that fact make no mistake.
Not a single breathe from my child’s lungs for granted I do take.
I’m a grateful Mother. My child is a gift.
Her presence here in my life is a everlasting lift.
I prayed to be a Mom each and every day.
I prayed a special soul would be on its’ way.
As months and years passed by without a child for me to love,
Sadness and Anger bruised my heart and I cursed the heavens above.
Holidays and celebrations were colored a dark and gloomy shade.
Even when the sun did shine--there was rain on my parade.
Then a guiding light led my child’s soul to me.
Words cannot express my joyfulness and glee.
I couldn’t believe I was a mom after wanting it for so long.
The Sadness and Anger in my heart finally moved along.
When there was no hope to be found in the darkest storms,
I had my own ray of sunshine wrapped safe within my arms.
My heart did heal instantly. I knew she was mine to keep.
Never had I felt a love so powerful and deep.
I honor and cherish my child with a love so grand.
I am so overwhelmed with gratitude each time I hold my child’s hand.
It’s a gift and privilege to be Mother, a child’s earthly light.
Never take for granted this gift, to honor those trying to be with all their might.
Not a single breathe from my child’s lungs for granted I do take.
I’m a grateful Mother. My child is a gift.
Her presence here in my life is a everlasting lift.
I prayed to be a Mom each and every day.
I prayed a special soul would be on its’ way.
As months and years passed by without a child for me to love,
Sadness and Anger bruised my heart and I cursed the heavens above.
Holidays and celebrations were colored a dark and gloomy shade.
Even when the sun did shine--there was rain on my parade.
Then a guiding light led my child’s soul to me.
Words cannot express my joyfulness and glee.
I couldn’t believe I was a mom after wanting it for so long.
The Sadness and Anger in my heart finally moved along.
When there was no hope to be found in the darkest storms,
I had my own ray of sunshine wrapped safe within my arms.
My heart did heal instantly. I knew she was mine to keep.
Never had I felt a love so powerful and deep.
I honor and cherish my child with a love so grand.
I am so overwhelmed with gratitude each time I hold my child’s hand.
It’s a gift and privilege to be Mother, a child’s earthly light.
Never take for granted this gift, to honor those trying to be with all their might.
Wednesday, April 20, 2011
The Infertile Egg Hunt “Part One of Four”

Maybe it’s all the talk about Easter eggs or all the trees blooming and coming to life that has me contemplating my own eggs and my quest to bring another life into the world. Lately I have been mulling over some of the options that my fertility doctor recommended if my husband and I want to move forward with our wish to have another child. When more than 92% of your eggs will lead to miscarriage, the options available are limited and require a great leap of faith. Over the next few weeks I will be researching and writing in greater detail about the three options available to me and my husband at this stage in our journey.
The first option that is available to me and my husband is finding an egg donor. This option would entail the egg donor taking stimulation medications, going through an egg retrieval surgery and then allowing her eggs to be used in an in vitro fertilization where the resulting embryo would be implanted into my uterus for normal gestation. My initial reaction to this option is slight horror. “My husband’s sperm is going to be mixing with another woman’s egg?” I know there are also lot of benefits to this route. But I will be speaking to Dr. Michael Blotner MD, Medical Director of Westchester Fertility, www.westchesterfertility.com, to learn more about this process.
The second option is embryo donation. Some couples who go through IVF end up having more embryos than they need or want. Certain people decide to destroy these embryos, others decide to donate them to scientific research, and still others, who feel that they can neither destroy nor give away their embryos, decide to put their embryos up for adoption. Couples like myself and my husband, who have a hard time creating viable embryos, can adopt these donated embryos and transfer them into the female's uterus. To learn more about this option, I will be talking to one of the leading organizations whose mission is to connect couples in need with couples who have leftover frozen embryos.
The last option open to us is adoption. There are many women in the fertility community, as well as the larger community, who have answered the call of adoption and have created their family in that way. I will be talking to Dawn Davenport, who created the nonprofit Creating a Family, www.creatingafamily.org , an organization providing education and support for infertility and adoption. She also wrote the book “The Complete Guide To International Adoption.”
In my heart I don’t think I am ready yet to start actively pursuing any of these options. I still am grieving our losses and our lost dream. But I am looking forward to researching egg donation, embryo donation and adoption in the next couple of weeks because I think that finding out more information is one of the first steps to seeing if any of the options are calling us to expand our family.
Wednesday, April 6, 2011
Come on Oprah and OWN Give Us A Voice!
Dear Oprah and The Oprah Winfrey Network,
On behalf of people struggling with infertility, I would like to suggest a concept for a brand new show on The Oprah Winfrey Network: following those on the journey of conception. You have brought countless stories to light, telling the tales of those who have overcome hardship, and it is my sincere hope that you will consider exploring the subject of infertility, so that the world will better understand the silent struggle that some people face when trying to achieve something that comes so naturally to others-- bringing a life into the world.
One in 8 couples will experience infertility. 1.1 million women will undergo fertility treatments this year. Yet, no one likes to talk about infertility. The inability to conceive a child at all, or without the help of medical treatment, is a taboo subject. In the past five years I have undergone one laparoscopic surgery, three in utero inseminations, three in vitro fertilizations and two rounds of embryo biopsies. I have suffered four miscarriages. I have lost twenty eight embryos. And yet, I still have close friends and family who have no idea what my husband and I have gone through, never mind co-workers or acquaintances. It is unreal to me that I can experience something so traumatic, consuming and debilitating without many people ever knowing about it.
From the many connections I have made through Twitter and through blogging, I know I am not alone in my feelings of helplessness and isolation. I have come across thousands of women who have heart wrenching stories that deserve to be told. Their stories comfort me, inspire me and break my heart time and time again. These are strong women who have been on unbelievable journeys.
Anyone who has struggled with infertility would deeply appreciate a show dedicated to their struggles, and all of the friends and family members of those people would certainly benefit from being educated on the topic of infertility. There are so many people who have no idea what it is like to be a part of this journey, to want more than anything to conceive a child but not be physically able to, to wonder why something so natural as reproducing can be so difficult, to grieve for the lost embryos or miscarried babies.
Many of us struggling with infertility watch shows like “Teen Mom” with a heavy heart. It is painful to hear about moms who weren’t planning their pregnancy, who feel inconvenienced by the expected child or who had huge reservations about having a baby. Those of us struggling with infertility sacrifice our physical, emotional, spiritual and financial stability to try to create life. This entails undergoing many procedures, taking many hormones and other medications, and visiting the doctor several times a week. Many couples dealing with infertility lose faith in what they believe in and at times feel utterly hopeless.
As a woman struggling with infertility, I want my voice, and the voices of all the other women struggling with reproduction, to be heard. We are tired of hiding in the dark. We hope that you and your producers read this blog entry and the stories of others at the links in the comments below. We have also set up a facebook group, http://www.facebook.com/groups/owninfertility . Some of these stories are funny, some are shocking, some are incredibly sad, but they all will touch your heart. These stories need to be heard!
So please Oprah, hear us! Be the first network to dedicate a show to the incredible journeys of the strong women who fight infertility for the chance at motherhood.
With Love,
Light and Happiness,
Casey
On behalf of people struggling with infertility, I would like to suggest a concept for a brand new show on The Oprah Winfrey Network: following those on the journey of conception. You have brought countless stories to light, telling the tales of those who have overcome hardship, and it is my sincere hope that you will consider exploring the subject of infertility, so that the world will better understand the silent struggle that some people face when trying to achieve something that comes so naturally to others-- bringing a life into the world.
One in 8 couples will experience infertility. 1.1 million women will undergo fertility treatments this year. Yet, no one likes to talk about infertility. The inability to conceive a child at all, or without the help of medical treatment, is a taboo subject. In the past five years I have undergone one laparoscopic surgery, three in utero inseminations, three in vitro fertilizations and two rounds of embryo biopsies. I have suffered four miscarriages. I have lost twenty eight embryos. And yet, I still have close friends and family who have no idea what my husband and I have gone through, never mind co-workers or acquaintances. It is unreal to me that I can experience something so traumatic, consuming and debilitating without many people ever knowing about it.
From the many connections I have made through Twitter and through blogging, I know I am not alone in my feelings of helplessness and isolation. I have come across thousands of women who have heart wrenching stories that deserve to be told. Their stories comfort me, inspire me and break my heart time and time again. These are strong women who have been on unbelievable journeys.
Anyone who has struggled with infertility would deeply appreciate a show dedicated to their struggles, and all of the friends and family members of those people would certainly benefit from being educated on the topic of infertility. There are so many people who have no idea what it is like to be a part of this journey, to want more than anything to conceive a child but not be physically able to, to wonder why something so natural as reproducing can be so difficult, to grieve for the lost embryos or miscarried babies.
Many of us struggling with infertility watch shows like “Teen Mom” with a heavy heart. It is painful to hear about moms who weren’t planning their pregnancy, who feel inconvenienced by the expected child or who had huge reservations about having a baby. Those of us struggling with infertility sacrifice our physical, emotional, spiritual and financial stability to try to create life. This entails undergoing many procedures, taking many hormones and other medications, and visiting the doctor several times a week. Many couples dealing with infertility lose faith in what they believe in and at times feel utterly hopeless.
As a woman struggling with infertility, I want my voice, and the voices of all the other women struggling with reproduction, to be heard. We are tired of hiding in the dark. We hope that you and your producers read this blog entry and the stories of others at the links in the comments below. We have also set up a facebook group, http://www.facebook.com/groups/owninfertility . Some of these stories are funny, some are shocking, some are incredibly sad, but they all will touch your heart. These stories need to be heard!
So please Oprah, hear us! Be the first network to dedicate a show to the incredible journeys of the strong women who fight infertility for the chance at motherhood.
With Love,
Light and Happiness,
Casey
Monday, March 28, 2011
Running For My Life In The March For Babies
We all have had experiences in our lives that have left us downtrodden. Unfortunately, part of being human is feeling pain, whether it be physical or emotional. We all have difficult roads in our life journey that we need to survive and hopefully, ultimately rise above.
Infertility and recurrent pregnancy loss have been a huge and rather difficult part of my journey these past four years. Infertility has left me feeling powerless, weak and helplessly unable to control my physical or emotional self. I have had surgeries and gone through multiple IVFs that have put me on bed rest and have made me physically weak and in pain. The many different hormones I have been on and the overall stress of infertility has put me on an emotional roller coaster that has left me feeling overwhelmed and sad. I have been starting to feel that I am no longer in control of my own well being.
I have also done a lot of waiting these past four years that has left me feeling inadequate. I have been waiting in doctor’s offices, waiting on the phone to fight with my insurance company, waiting for my medications to come, waiting for my procedures to happen and waiting to see if all of this waiting was worth it. The problem with waiting is that you don’t go anywhere. When you wait, life is put on hold and you can’t move forward. There are many situations where you know your waiting will pay off, and the object of desire is right around the corner, but with many things in life, including bringing life into the world, nothing is guaranteed, and your waiting may not pay off.
So what do you do when you can’t wait any longer? What do you do when you come to terms with the fact that what you desire most is not around the corner? How do you heal from such a deep sense of loss? How do you move on without losing all hope? How do you find yourself again, or perhaps redefine yourself?
These are the questions I have been wrestling with since the failure of our final IVF last fall. My husband and I started our journey with infertility in February of 2006. We were so lucky to conceive our daughter through IUI two years later. She was born prematurely in January of 2008, but she is, thank goodness, a happy and healthy little girl today. Six months after her birth we started trying to conceive again. We have spent four years--almost half our marriage trying to conceive--undergoing many procedures, suffering many pregnancy losses, climbing this uphill battle, waiting for another miracle. But it seems, in the world of fertility procedures, there is nothing positive waiting for us anymore. This reality has left me feeling sad, powerless and empty.
I have been wracking my brain trying to figure out something to make me feel strong again, something to make me feel powerful. I need to feel in control again and physically healthy. I recently saw online an advertisement for the March of Dimes, “March For Babies 10k,” an event that will “raise money for research and programs that help moms have full-term pregnancies and babies begin healthy lives…bring comfort and information to families with a baby in newborn intensive care.” My husband, my daughter and I were all preemies and all spent time in the NICU. This organization is very meaningful to me.
I have decided to participate in the 10k, despite the fact that I have zero running experience and have never done a race. But I have been training using a, “Couch to 10k” program, and I am proud to say I ran 3 miles non-stop on the tread mill the other day. I never thought I would be able to accomplish something like this. With all my body has been through the past four years, I didn’t even think I could walk two miles, never mind run three. Training has left me feeling physically strong and powerful. The running seems like a literal, as well as a symbolic, “moving forward.” It is refreshing to have a big goal that I can accomplish through hard work. I feel in control again.
When we struggle through the tough roads of our journey, there is always a time of healing that must follow. I am hoping that crossing the finish line, hand and hand with my husband, who is also running the 10k, will help us move past the challenges and the losses we have faced these past four years. I am hoping to feel like I can “kick butt” again, for who knows what challenges may come next!
Go Team Annie Grace!

For more information on how to support March Of Dimes, visit their website, www.marchofdimes.com.
Infertility and recurrent pregnancy loss have been a huge and rather difficult part of my journey these past four years. Infertility has left me feeling powerless, weak and helplessly unable to control my physical or emotional self. I have had surgeries and gone through multiple IVFs that have put me on bed rest and have made me physically weak and in pain. The many different hormones I have been on and the overall stress of infertility has put me on an emotional roller coaster that has left me feeling overwhelmed and sad. I have been starting to feel that I am no longer in control of my own well being.
I have also done a lot of waiting these past four years that has left me feeling inadequate. I have been waiting in doctor’s offices, waiting on the phone to fight with my insurance company, waiting for my medications to come, waiting for my procedures to happen and waiting to see if all of this waiting was worth it. The problem with waiting is that you don’t go anywhere. When you wait, life is put on hold and you can’t move forward. There are many situations where you know your waiting will pay off, and the object of desire is right around the corner, but with many things in life, including bringing life into the world, nothing is guaranteed, and your waiting may not pay off.
So what do you do when you can’t wait any longer? What do you do when you come to terms with the fact that what you desire most is not around the corner? How do you heal from such a deep sense of loss? How do you move on without losing all hope? How do you find yourself again, or perhaps redefine yourself?
These are the questions I have been wrestling with since the failure of our final IVF last fall. My husband and I started our journey with infertility in February of 2006. We were so lucky to conceive our daughter through IUI two years later. She was born prematurely in January of 2008, but she is, thank goodness, a happy and healthy little girl today. Six months after her birth we started trying to conceive again. We have spent four years--almost half our marriage trying to conceive--undergoing many procedures, suffering many pregnancy losses, climbing this uphill battle, waiting for another miracle. But it seems, in the world of fertility procedures, there is nothing positive waiting for us anymore. This reality has left me feeling sad, powerless and empty.
I have been wracking my brain trying to figure out something to make me feel strong again, something to make me feel powerful. I need to feel in control again and physically healthy. I recently saw online an advertisement for the March of Dimes, “March For Babies 10k,” an event that will “raise money for research and programs that help moms have full-term pregnancies and babies begin healthy lives…bring comfort and information to families with a baby in newborn intensive care.” My husband, my daughter and I were all preemies and all spent time in the NICU. This organization is very meaningful to me.
I have decided to participate in the 10k, despite the fact that I have zero running experience and have never done a race. But I have been training using a, “Couch to 10k” program, and I am proud to say I ran 3 miles non-stop on the tread mill the other day. I never thought I would be able to accomplish something like this. With all my body has been through the past four years, I didn’t even think I could walk two miles, never mind run three. Training has left me feeling physically strong and powerful. The running seems like a literal, as well as a symbolic, “moving forward.” It is refreshing to have a big goal that I can accomplish through hard work. I feel in control again.
When we struggle through the tough roads of our journey, there is always a time of healing that must follow. I am hoping that crossing the finish line, hand and hand with my husband, who is also running the 10k, will help us move past the challenges and the losses we have faced these past four years. I am hoping to feel like I can “kick butt” again, for who knows what challenges may come next!
Go Team Annie Grace!

For more information on how to support March Of Dimes, visit their website, www.marchofdimes.com.
Monday, March 14, 2011
You Are Not Fat, You Are Pregnant...
Dear Pregnant Women,
Lately I have been hearing some of you outright trash your bodies during this miraculous state of being and it has infuriated me on many different levels. At five, four or even as soon as three months pregnant, some of you describe yourselves as large, fat, obese or humongous, and one of you even referred to yourself as the size of a “Mac truck.” I am begging you to stop this trash talk, if not for your own sake, for the sake of your infertile friends.
Having had the blessing of being pregnant with my daughter, I have lived through the extraordinary changes a woman’s body goes through during this incredible time. I know and can appreciate how hard pregnancy is. I clearly remember the nausea, the aches and pains, the stretch marks and the multitude of other bizarre and seemingly unreasonable conditions a woman will experience throughout her pregnancy. But having struggled to get pregnant with my daughter, and then not being able to carry my subsequent pregnancies past 8 weeks, I also know what it is like to want to be pregnant more than anything else in the world. I see pregnancy as a miracle, a gift and something to be cherished.
When some of you trash your bodies, it saddens me to the core. I realize these comments come out of great insecurity as you struggle to come to terms with your new body. But when I hear a four-month pregnant woman who is starting to show, say, “I am humongous and gross,” it makes me so angry. I feel she is not appreciating this incredible gift of having a baby growing inside of her. When I look at the same four month pregnant woman, I have feelings of wonder and amazement. Truth be told, there might also be some feelings of envy and sadness as I start to think about my own unfulfilled desire to be pregnant. So when I ask you, “How are you feeling?” and you say, “Disgusted. I am huge already,” I must admit that I am disgusted too, but not by your size but by your negative attitude.
When I was pregnant with my daughter, I was grateful for every pound I gained and every pant size that I had to retire. To me that meant my baby was thriving and getting bigger. Everything on my body got bigger, my butt, my legs, my arms. I don’t even want to talk about my bra size. Let’s just say that I didn’t know until I was pregnant that cup sizes reached well above the DD’s into the middle of the alphabet. I was just grateful my baby was healthy and I was able to be a part of this incredible phenomenon that I had hoped and prayed for, for many years.
I have to be honest, I did not carry my baby to full term. I can only imagine how “large” and “humongous” women feel towards the end of the last trimester, and God help those women who carry well past their due date! I have friends who have carried and naturally delivered 9 and 10 pound babies, and I am inspired by them. I also can’t imagine carrying multiples. But those feelings of being “large” should come out of understandable discomfort and a desire to not walk around feeling like you have 20 pound weights attached to each ankle, not out of a desire to want to look like a super model.
I guess what I am saying is this-- Pregnant ladies, be gentle with yourself and love your pregnant body. Please appreciate and cherish this gift, especially out of sensitivity to all of us ladies dealing with infertility or those women who may never have the opportunity to be pregnant. We as women, pregnant or not, beat ourselves up and often compare ourselves to Hollywood standards. Looking like a glowing and pregnant Natalie Portman did on Oscar night is not reality unless you have a team of people getting you ready each morning. And yes some starlet pregnancies may come and go and their weight may not reach the non pregnancy weight of us real women. But that is not reality either.
So please, cherish and love your body! Enjoy your curves for at least this short period of time! And for goodness sake, remember that the changes your body is going through are on account of a beautiful baby growing inside of you, and there are many women struggling with infertility who would give anything to have your growing belly!
Sincerely,
Casey
Lately I have been hearing some of you outright trash your bodies during this miraculous state of being and it has infuriated me on many different levels. At five, four or even as soon as three months pregnant, some of you describe yourselves as large, fat, obese or humongous, and one of you even referred to yourself as the size of a “Mac truck.” I am begging you to stop this trash talk, if not for your own sake, for the sake of your infertile friends.
Having had the blessing of being pregnant with my daughter, I have lived through the extraordinary changes a woman’s body goes through during this incredible time. I know and can appreciate how hard pregnancy is. I clearly remember the nausea, the aches and pains, the stretch marks and the multitude of other bizarre and seemingly unreasonable conditions a woman will experience throughout her pregnancy. But having struggled to get pregnant with my daughter, and then not being able to carry my subsequent pregnancies past 8 weeks, I also know what it is like to want to be pregnant more than anything else in the world. I see pregnancy as a miracle, a gift and something to be cherished.
When some of you trash your bodies, it saddens me to the core. I realize these comments come out of great insecurity as you struggle to come to terms with your new body. But when I hear a four-month pregnant woman who is starting to show, say, “I am humongous and gross,” it makes me so angry. I feel she is not appreciating this incredible gift of having a baby growing inside of her. When I look at the same four month pregnant woman, I have feelings of wonder and amazement. Truth be told, there might also be some feelings of envy and sadness as I start to think about my own unfulfilled desire to be pregnant. So when I ask you, “How are you feeling?” and you say, “Disgusted. I am huge already,” I must admit that I am disgusted too, but not by your size but by your negative attitude.
When I was pregnant with my daughter, I was grateful for every pound I gained and every pant size that I had to retire. To me that meant my baby was thriving and getting bigger. Everything on my body got bigger, my butt, my legs, my arms. I don’t even want to talk about my bra size. Let’s just say that I didn’t know until I was pregnant that cup sizes reached well above the DD’s into the middle of the alphabet. I was just grateful my baby was healthy and I was able to be a part of this incredible phenomenon that I had hoped and prayed for, for many years.
I have to be honest, I did not carry my baby to full term. I can only imagine how “large” and “humongous” women feel towards the end of the last trimester, and God help those women who carry well past their due date! I have friends who have carried and naturally delivered 9 and 10 pound babies, and I am inspired by them. I also can’t imagine carrying multiples. But those feelings of being “large” should come out of understandable discomfort and a desire to not walk around feeling like you have 20 pound weights attached to each ankle, not out of a desire to want to look like a super model.
I guess what I am saying is this-- Pregnant ladies, be gentle with yourself and love your pregnant body. Please appreciate and cherish this gift, especially out of sensitivity to all of us ladies dealing with infertility or those women who may never have the opportunity to be pregnant. We as women, pregnant or not, beat ourselves up and often compare ourselves to Hollywood standards. Looking like a glowing and pregnant Natalie Portman did on Oscar night is not reality unless you have a team of people getting you ready each morning. And yes some starlet pregnancies may come and go and their weight may not reach the non pregnancy weight of us real women. But that is not reality either.
So please, cherish and love your body! Enjoy your curves for at least this short period of time! And for goodness sake, remember that the changes your body is going through are on account of a beautiful baby growing inside of you, and there are many women struggling with infertility who would give anything to have your growing belly!
Sincerely,
Casey
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