Thursday, January 30, 2014

Week Three of Bloggers Unite for #EndoMarch2014: Letter to my Representative

Week Three of Bloggers Unite for #Endomarch2014 is upon us and I am so inspired when I read the blogs of other participants. This blog task may be one of the most important yet, writing a letter to your Congressional Representative regarding the march.

 It is so important to invite your Congressional Representative to the march and to give them information regarding the march. Upon contacting their representatives, some other women have actually been contacted and invited to a meeting with their representative to talk about the march and endometriosis. Maybe your representative cannot make the march, but maybe they will wear a yellow ribbon that day in support and post it? Maybe they will post information regarding the march on their social media sites? You never know what can happen and what doors may be opened! Feel free to cut and paste my letter and make it your own! Check out some of the other letters posted and feel free to borrow from them as well! Find out how to contact your representatives here:

The Honorable Eliot L. Engel

Member of the House of Representatives

2161 Rayburn House Office Building

 Washington, DC 20515  


I invite you to be part of an exciting worldwide movement on March 13, 2014 to support women with endometriosis. For far too long, women have been suffering with this disease in silence. Let this year be the year we leave our pain, hopelessness and despair behind. On March 13th we will bring our strength, resiliency and determination to the streets of Washington, D.C. to have our voices heard. It takes an average of ten years for a woman to be diagnosed with endometriosis due to the lack of education and awareness among medical professionals. By the time a woman is diagnosed, her health has been damaged, in many instances irreversibly.  Did you know that New York State Department of Health has recognized endometriosis to be one of three diseases that causes significant harm to young people? Statistics show that right at this moment, one in ten of your female constituents are suffering from endometriosis.  

I am part of that statistic. I was misdiagnosed and misunderstood by many medical professionals while I was in my late teens and early twenties.  Despite the fact that endometriosis was present throughout my pelvic cavity, I was told by doctors that I had a low pain tolerance and that my symptoms were either just in my head or were caused by mental health issues. Finally, when I was 26 years old, a fertility doctor properly diagnosed me with endometriosis after performing an exploratory laparoscopic surgery. I have had a total of six endometriosis-related surgeries, the last of which occurred in October 2013 and was performed by 4 different surgeons: an endometriosis excision specialist, a colorectal surgeon, a urologist and a cardiothoracic surgeon.

I am joining women gathered from across the nation in Washington, D.C. on March 13, 2014 for the Million Women March, to better educate medical professionals and spread awareness to the greater community, so that the disease can be more easily and timely recognized by doctors and patients alike.  One of our goals is to make endometriosis education part of school curricula to help young girls get diagnosed early and accurately. As we work toward our ultimate goal of encouraging research to find a cure for this disease, we will also advocate for better diagnostic tools for doctors and better treatment options for patients.

I hope that you can join me in Washington, D.C. on March 13, as my representative and as an individual with compassion toward women suffering with endometriosis. You have a great record for championing healthcare for your constituents, and I would be proud to march beside you that day. For more information regarding the march, please visit:

Thank you very much for your kind consideration.

Casey Berna

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